Wednesday, December 8, 2010

"Pink Angel Kiss"...

...is what Abigail calls her spot on her face. It popped up on Sept 3, 2010, the day before her 3rd birthday and has been growing ever since. It is located on the lower left eye socket bone (not sure of technical name). First thought it was a scratch but it kept getting bigger and did not heal, then about 2 weeks later, it became 3-dimensional. While we were waiting many weeks for the dermatologist appt, she complained of it becoming itchy (thanks to Sasha and Amanda for the heads-up that it might ulcerate) and a few nights later after she was in bed, she came out of her room in tears. She was covered in blood, from her blonde hair to her toes...talk about freaky. Knew exactly what happened as the blood was pulsating out of her little spot and calmly got the bleeding stopped with compression. She must have scratched it in her sleep which opened up the lesion. She became calmer once we got her blood-soaked pjs off of her and into the bath to wash off. Yay for laundry detergent that removed all crimson remnants off her best "sleeping friends"!

Now that her spot was an open wound, the derm would not touch her. We were prepared to travel to Little Rock or Dallas to see a vascular surgeon who specialized in these anomalies, but Amanda Lowry worked her magic! She located Dr. Glade who completed a fellowship at Children's in Little Rock in the vascular clinic and recently relocated to Children's Hospital in OKC. YAY!! We now have someone local!!!

Dr. Glade recommended topical treatment to hopefully reduce its size. Unfortunately, within a few days, the spot re-grew and was back to its size prior to ulceration, but closed. So here we are...

Abigail had a MRI this morning where Dr. Glade will determine exactly what type of spot it is and its depth, which will tell us if it can be treated with injectable steroids or will have to be excised...obviously, we are hoping for the former, but want the most effective treatment and least scarring.

"Nothing more sobering than holding your child as they go limp from anesthesia. Thank you, fabulous people of Children's Hospital for that grace." ( my Facebook status from today)

Little Abigail is a fantastic patient, always willing to do what med professionals need her to do. She has been really excited about having a vast array of band-aids to wear daily, from Toy Story to Dora to Shrek. Note to 3M: don't advertise Princess Fiona on the box of Band-Aids but not have any with her picture on it...very upsetting to 3 yo little girls.

Here are a few pictures of the progression (thanks Sash for this recommendation and fancy camera assistance--cool [in a weird way] to watch its growth).


September 3, 2010...can barely see it, looks like pin-prick


October 9, 2010


October 31, 2010


November 22, 2010...day after ulceration


November 24, 2010...growing again


Check back soon to hear prognosis and please keep little Miss A in your thoughts and prayers.

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